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Erin Miller's son was accepting seizures and all the motor abilities he had acquired disappeared. Now, afterwards actuality on cannabis for a year and a half, he’s walking, running, giving high-fives and hugs, and actuality a little boy Zach Boyden-Holmes/The Register

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Erin Miller works with her son Abram, 4, at Childserve Wednesday, Dec. 7, 2016. Abram has been chargeless of admission and able to apprentice new abilities aback he started demography cannabis oil. (Photo: Zach Boyden-Holmes/The Register)Buy Photo

When Erin Miller dreamed of motherhood, she never absurd her activity would be organized about analysis accessories and medical analysis consultations.

She didn’t anticipate it would beggarly cutting up debt traveling from specialist to specialist or abstraction her 4-year-old son Abram’s annual of medical conditions, including a rare ataxia called UBE2A Deficiency Syndrome, which can annual seizures, bookish disability, motor delays, and defects in the brain, affection or kidneys.

And Miller, who is one of The Des Moines Register's Bodies to Watch in 2017, certainly never absurd she would accept to antechamber legislators, doctors and hospitals for the anesthetic she says has kept her son seizure-free for added than 500 canicule and accustomed him some affinity of normalcy: medical cannabis.

“Cannabis brought my son aback to me,” said Miller, who spent years disturbing to bulk out what exactly was amiss with Abram. “Just two years ago, he was accepting seizures and all the motor abilities he had acquired disappeared. Now, afterwards actuality on cannabis for a year and a half, he’s walking, running, giving high-fives and hugs, and actuality a little boy."

For the accomplished few years, Iowa legislators accept circuitous over what to do about medical cannabis. With the current medical marijuana law set to expire this summer, Miller and other advocates plan to apostle for a added absolute bill.

Abram Miller, 4, pushes the button to ride the elevator at Childserve on Wednesday, Dec. 7, 2016. Abram has been chargeless of admission and able to apprentice new abilities aback he started demography cannabis oil. (Photo: Zach Boyden-Holmes/The Register)

Rep. Clel Baudler, R-Greenfield, and Sen. Joe Bolkcom, D-Iowa City, accept said they plan to book medical marijuana bills back the aldermanic affair begins in January. Baudler has said he wants to absolute articles to low-THC oil fabricated from the marijuana plant, frequently alleged cannabidoil or CBD, while Bolkcom wants patients with a advanced array of afflictions to accept admission to the absolute cannabis bulb and a fuller ambit of products.

The accepted bill, anesthetized in 2014, allows only patients with awkward attack to admission CBD with beneath than 3 percent THC, the actinic associated with marijuana’s consciousness-expanding properties. That legislation gave Abram admission to the anesthetic he uses, but a abstracted statute deems accomplishment or distributing marijuana actionable in Iowa, and federal regulations prohibit alteration the bulb beyond accompaniment lines. Effectively, Miller is breaking the law every time she goes to Colorado to admission her son’s medicine.

Miller says she found pharmaceuticals declining her son, with nowhere larboard to turn. She is not a criminal, she says, aloof a ancestor who wants her son to be able to admission a stronger dosage of CBD or a altered allotment of the bulb if he needs it. And she wants her accompany with cancer, ALS (also accepted as Lou Gehrig's disease) and abiding affliction to be able to admission the blazon of artefact they need, whether that be oil with a college THC agreeable or added forms of marijuana.

“I’ve met so abounding bodies absolutely out of medical options that deserve this, too,” she said.

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While nationally the medical association disagrees over what to do about medical marijuana, 78 percent of Iowans abutment acceptance bodies to use cannabis as medicine, added than anytime before, according to a Des Moines Register/Mediacom Iowa Poll conducted in February 2016. With high-profile leaders, including Bob Vander Plaats, admiral of evangelical Christian alignment The Ancestors Leader, and a cadre of business executives in abutment of aldermanic action, Miller is hopeful assembly will get a bill passed.

If they don’t, it ability mean moving her family to Colorado to ensure Abram can legally access medical marijuana.

“Abram is a prime archetype that legislators did acceptable back they put that bill into aftereffect in 2014,” Miller said. “Now, they accept a adventitious to advice others in the aforementioned way.”

Erin Miller works with her son Abram, 4, and Megan Dean at Childserve Wednesday, Dec. 7, 2016. Abram has been chargeless of admission and able to apprentice new abilities aback he started demography cannabis oil.  (Photo: Zach Boyden-Holmes/The Register)

Miller had a absolutely accustomed pregnancy, she said. But that’s area “normal” stopped.

Abram got ashore during bearing and Miller had an emergency cesarean section. Doctors then discovered she lacked amniotic fluid. Amid Abram’s break at the neonatal accelerated affliction unit, his attach beds and aperture angry amethyst and his nasal passages had to be suctioned. He hadn’t been accepting the actual bulk of oxygen for a few days.

When Abram assuredly went home, he never chock-full agreeable and crying, and he never slept, Miller said.

“It was about like he was ... in pain, askew in affliction and screaming,” she added.

Miller knew something was actual wrong, she said, but no one would listen.

“Even my abutting accompany were like, ‘You are aloof not blessed at home with your baby,’ or, ‘Maybe you accept postpartum depression,'" she said.

Erin Miller watches as her son Abram, 4, works with Megan Dean at Childserve Wednesday, Dec. 7, 2016. Abram has been chargeless of admission and able to apprentice new abilities aback he started demography cannabis oil.  (Photo: Zach Boyden-Holmes/The Register)

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Miller appointed an arrangement with a neurologist and apparent that Abram had been accepting about ceaseless seizures due to academician abnormalities.

Abram's doctors absitively to alpha him on an anti-epileptic biologic and, for the aboriginal month, aggregate seemed OK, Miller said.

But again worse seizures came. Her son’s doctors assigned added of the anti-epileptic drug, she said. Abram had aloof amorphous to airing at 2 and a bisected years old, but he started annoyed and not actuality able to booty accomplish or clamber straight. He regressed. Miller said the doctors’ alone acknowledgment was added anti-epileptic drugs.

Unsure what to do, Abram’s neurologist told the ancestors they bare to acquaintance a specialist, Miller said, and added that they should anticipate about aggravating cannabis.

Erin Miller holds a canteen of cannabis oil at her home in Dallas Center Wednesday, Dec. 7, 2016. Miller is an apostle for medical marijuana in Iowa. Her 4-year-old son, Abram, has been chargeless of seizures and able to apprentice new abilities aback he started demography cannabis oil. (Photo: Zach Boyden-Holmes/The Register)

Miller acquired a canteen of CBD oil in June 2015 and about anon noticed a change in her boy.

“He was able to accomplish eye acquaintance and smile,” she said. “His accomplished motor abilities began to bolt up. … he went from actually not application his fingers to actuality able to do puzzles.”

Nationally, 28 states, Guam and D.C. have legalized absolute medical marijuana, while another 16 states allow for some anatomy of CBD or low-THC products.

But alike as added states accept legalization, the medical association lacks accord on medical marijuana. A contempo poll in the New England Journal of Anesthetic begin that 76 percent of experts backed medical marijuana use and the American Nurses Association “has accurate accouterment safe admission to ameliorative marijuana and accompanying cannabinoids for over 20 years.”

On the added hand, the American Medical Association will not booty a position on the use of medical marijuana until added research is completed. And the Federal Biologic Administration has not accustomed marijuana for any use.

One of the better arguments Miller hears adjoin accretion medical marijuana admission in Iowa is it’s a glace abruptness to acceptance recreational marijuana. But Miller fatigued that she’s alone advocating for “safe and organically developed and lab-tested” medical cannabis.

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Over the years, Miller has approved to let go of the acrimony against those who she acquainted weren’t alert to her. Even admitting actuality abandoned was “traumatizing,” she said, it angry out Abram had an acutely attenuate action and she now realizes they aloof didn’t apperceive the best advance of treatment.

Miller is the astronomic buck she never knew she could be, angry for her cub and the anesthetic she believes he needs.

And she claims a little achievement every time she sees that ablaze chicken agenda in Abram's medical book that says, "Listen to mom."

Erin Miller stands for a annual at her home in Dallas Center on Wednesday, Dec. 7, 2016. Miller is an apostle for medical marijuana in Iowa. Her 4-year-old son, Abram, has been chargeless of seizures and able to apprentice new abilities aback he started demography cannabis oil. (Photo: Zach Boyden-Holmes/The Register)

AGE: 40

LIVES: Dallas Center. Miller is originally from Creston.

EDUCATION: Bachelor’s in clear design, Grand View University, 2006.

CAREER: Miller is a calm mom and apostle for medical cannabis. 

FAMILY: Husband, Tracy Miller, 39, and son, Abram Miller, 4. Her mother, Carolyn Bollman, lives with the Millers and helps with Abram’s care.

These are axial Iowans in business, arts, nonprofits, borough activism and unelected government positions who are accepted to accomplish a aberration in their fields of endeavor in 2017. Readers were arrive to abide nominations. Selections were fabricated by Des Moines Register editors and reporters. Look for profiles circadian through aboriginal January.

With this adventure at DesMoinesRegister.com/PeopletoWatch, see profiles of:​

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